Smanewstoday.com

AAN 2023: Spinraza shows benefits in clinical trial of SMA adults

WebTo learn more about how treatment with Spinraza affects adults with milder forms of the disease, the Washington University School of Medicine, in St. Louis, Missouri, is sponsoring a clinical trial called Spinraza in Adult SMA, or SAS (NCT03709784). “The SAS trial … is designed to look at the safety and efficacy of [Spinraza] over 30 months in …

Actived: 9 days ago

URL: smanewstoday.com

SMA Carries Substantial Cost and Healthcare Burden, Review Finds

(2 days ago) WebAn Italian National Health Service study of annual direct medical costs incurred per patient by disease type, published in 2019, also found costs higher for those …

Category:  Medical Go Now

What It Means to Stay Healthy While Living With SMA

(2 days ago) WebOne glance at my medical records will very clearly tell you that I’m not exactly healthy. The information contained within my chart includes a primary diagnosis …

Category:  Medical Go Now

Zolgensma for SMA SMA News Today

(5 days ago) WebA one-time gene therapy, Zolgensma (onasemnogene abeparvovec-xioi) is widely approved for the treatment of spinal muscular atrophy (SMA). It was the second SMA treatment ever to be approved in the U.S. and the first approved gene therapy for the rare disease. Zolgensma was originally developed by AveXis, now known as Novartis Gene …

Category:  Health Go Now

Living Well With SMA SMA News Today

(6 days ago) WebLiving Well With SMA. Spinal muscular atrophy (SMA) is a rare genetic condition characterized by progressive muscle weakness and atrophy, mainly affecting motor …

Category:  Health Go Now

SMA Screening Now Available to 87% of Newborns in US

(1 days ago) WebSMA was added in 2018 to the RUSP, a list of conditions the U.S. Department of Health and Human Services recommends for state universal screening …

Category:  Health Go Now

Worse Health-related Quality of Life Found for SMA Children in …

(9 days ago) WebChildren with spinal muscular atrophy (SMA) type 2 and 3 have lower health-related quality of life (HRQoL) compared with healthy youngsters, but scores are …

Category:  Health Go Now

#AAN2022 – Verana Health Launches Resource to Support SMA …

(5 days ago) WebThe new resource was announced recently at the annual meeting of the American Academy of Neurology (AAN) in Seattle, Washington. The first module to …

Category:  Health Go Now

SMA Type 4: Symptoms, Treatment, and More SMA …

(6 days ago) WebThis gene provides instructions to produce SMN, a protein essential for motor neuron and muscle health. What are the symptoms of SMA type 4? Symptoms of SMA …

Category:  Health Go Now

Introducing SMA My Way, a New Patient-focused Community

(Just Now) WebBy day she works as an advocate, bridging disability and mental health awareness to empower people to live their best lives; by night, she dabbles in …

Category:  Health Go Now

Healthcare Is Rarely a Walk in the Park

(5 days ago) WebShe was diagnosed with spinal muscular atrophy type 2 in 1996 and lives with co-occurring physical and mental health conditions. By day she works as an advocate, …

Category:  Health Go Now

About Us SMA News Today

(4 days ago) WebAbout SMA News Today. SMA News Today is a digital platform intended to provide the spinal muscular atrophy (SMA) community with the most recent news and information on …

Category:  Health Go Now

Spinal Muscular Atrophy (SMA) Treatment SMA News Today

(9 days ago) WebZolgensma. Zolgensma (onasemnogene abeparvovec-xioi) is a one-time gene therapy approved in the U.S. to treat all main types of SMA in children up to age 2. The …

Category:  Health Go Now

SMA's Impact on Daily Life, Caregivers Should Be Measured, Study …

(8 days ago) Webby Joana Carvalho, PhD December 11, 2019. The impact of spinal muscular atrophy on daily life activities and the burden for caregivers should be added to tools …

Category:  Health Go Now

SMA News Today Home SMA News Today

(5 days ago) WebThe Muscular Dystrophy Association (MDA) has opened the MDA Gene Therapy Support Network — a new program it’s dubbed GTx — to aid and educate families living with spinal muscular atrophy (SMA) or other neuromuscular diseases (NMDs) who may be considering a gene therapy as part of…. May 25, 2023 Columns by Ari Anderson.

Category:  Health Go Now

Zolgensma Label to Include Warning of Acute Liver Failure Deaths

(1 days ago) WebAcute liver failure was known to be a potential severe side effect of Zolgensma, highlighted in a boxed warning added in 2021 to on the prescribing …

Category:  Health Go Now

SMA Life Expectancy and Disease Onset SMA News Today

(5 days ago) WebSMA Life Expectancy and Disease Onset. Spinal muscular atrophy (SMA) is a progressive genetic disorder that affects the nervous system and muscles, and is a very rare disease at that, found in an estimated 1 in every 6,000 to 1 in every 10,000 people. It is caused by a loss of specialized nerve cells, called lower motor neurons, leading to

Category:  Health Go Now

SMA Gene Therapy SMA News Today

(2 days ago) WebZolgensma (onasemnogene abeparvovec-xioi) is the only gene therapy currently approved to treat SMA. It is marketed by Novartis, and administered via a single infusion into the bloodstream. The therapy uses a harmless, lab-engineered version of adeno-associated virus serotype 9 (AAV9) to deliver its genetic payload to the body’s cells.

Category:  Health Go Now

Too Little Known About Care Needs of Adults with SMA, Study Says

(4 days ago) WebA better understanding of the needs of adults with spinal muscular atrophy (SMA), best ensuring for their mental and social — as well as physical — well-being, is …

Category:  Health Go Now

Medicare and Medicaid: What You Need to Know SMA News Today

(2 days ago) WebHealth care can be hard to figure out, especially when it comes to eligibility and the benefits that result from being a Medicare or Medicaid patient. The difference …

Category:  Health Go Now

Apitegromab (SRK-015) for Spinal Muscular Atrophy (SMA)

(5 days ago) WebApitegromab (SRK-015) is an experimental muscle-directed therapy being developed by Scholar Rock for spinal muscular atrophy (SMA). It is designed to improve motor abilities in SMA patients. As a muscle-directed therapy, apitegromab’s mechanism of action is distinct from currently approved disease-modifying therapies for SMA, all of …

Category:  Health Go Now