Rarediseasesnetwork.org

Home Rare Diseases Clinical Research Network

View the diseases that we currently study here. To learn about other rare diseases, visit the NIH’s Genetic and Rare Diseases Information Center (GARD), which helps the public reliable information about rare and genetic diseases. Contact their specialists at 888-205-2311 or email [email protected].

Actived: 6 days ago

URL: rarediseasesnetwork.org

Diseases Studied

(4 days ago) WebThe Rare Diseases Clinical Research Network (RDCRN) is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences …

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What are Rare Diseases

(4 days ago) WebIt is further estimated that 350 million people suffer from rare diseases worldwide. Rare diseases are an important cause of chronic illness, disability, and premature death in …

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Resources for Patients and Families Rare Diseases Clinical …

(3 days ago) WebUndiagnosed Diseases Network (UDN) The Undiagnosed Diseases Network (UDN) is a research study funded by NIH that aims to improve the diagnosis and care of patients …

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RDCRN Contact Registry Rare Diseases Clinical Research Network

(4 days ago) WebThe RDCRN is a research network funded by the National Institutes of Health (NIH). It fosters research to better understand, diagnose, and treat rare diseases. Our 20 …

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Our Network Rare Diseases Clinical Research Network

(3 days ago) WebOur History. The RDCRN was established by Congress under the Rare Diseases Act in 2002. The network is an initiative of the National Institutes of Health (NIH), led by the …

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Rare Diseases Clinical Research Network Launches COVID-19 …

(Just Now) WebThe National Institutes of Health-supported Rare Diseases Clinical Research Network (RDCRN) conducted a series of online surveys to find out how the COVID-19 …

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Funding Opportunities

(7 days ago) WebEligibility Criteria: Candidates for the award must have a doctoral degree within the health professions (e.g., MD, DO, DDS, DMD, OD, DC, PharmD) and be actively affiliated with …

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Home Brittle Bone Disorders

(6 days ago) WebThe Brittle Bone Disorders Consortium (BBDC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) …

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Home Frontiers in Congenital Disorders of Glycosylation

(8 days ago) WebThe Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National …

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Home Congenital and Perinatal Infections Consortium

(7 days ago) WebThe Congenital and Perinatal Infections Consortium (CPIC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health …

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Preliminary Survey Results Highlight Impact of COVID-19 on Rare …

(Just Now) WebThe National Institutes of Health helped disseminate information about the survey through an official press release. The online survey collected variables including patient …

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Rare Research Report: January 2023

(1 days ago) WebEosinophilic esophagitis (EoE) is a disorder in which eosinophils (white blood cells of the immune system) build up in the esophagus (the tube that carries food …

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PIGN-Congenital Disorder Of Glycosylation (PIGN-CDG)

(2 days ago) WebThe Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National …

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Rare Research Report: November 2022

(2 days ago) Web00:00. 02:11. DDOST-CDG is an ultra-rare type of congenital disorder of glycosylation (CDG) that is caused by mutations in the gene DDOST. The metabolic …

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Primary Immune Deficiency Treatment Consortium (PIDTC)

(3 days ago) WebFebruary 27, 2019. The Primary Immune Deficiency Treatment Consortium (PIDTC) is a part of the Rare Diseases Clinical Research Network (RDCRN) funded by the (National …

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Clinical Sites Genetic Disorders of Mucociliary Clearance …

(2 days ago) WebThe Genetic Disorders of Mucociliary Clearance Consortium (GDMCC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes …

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Resources for Researchers and Clinicians Rare Diseases Clinical

(8 days ago) WebA variety of government agencies and other organizations offer information, resources, and services for rare disease researchers and clinicians. Click on the accordions below to …

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Surveys on the Impacts of COVID-19 on the Rare Diseases …

(9 days ago) WebThese surveys will help identify common issues with mental health support, access to treatment, vaccine availability and concerns, physical health, availability of supplies, or …

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Clinical Sites Primary Immune Deficiency Treatment Consortium

(2 days ago) WebThe Primary Immune Deficiency Treatment Consortium (PIDTC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes …

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